Meet Ignacio - a CRL interview

Meet Ignacio - a CRL interview

Meet our second disruptor Ignacio Muñoz-Sanjuán. Find out how Ignacio’s work is enabling organizations to develop novel therapies for Huntington’s disease. Through his drug discovery work at CHDI Foundation, a nonprofit organization, Ignacio fuels his motivation to uncover potential treatments and an eventual cure for this crippling transgenerational disease by…
Tackling Huntington’s Disease from All Angles

Tackling Huntington’s Disease from All Angles

One Scientist’s Journey to Change the Status Quo Even with the strides in research that scientists have made in the last few decades, the innerworkings of the brain remain a mystery. Neurological diseases like Huntington’s, Parkinson’s,and Alzheimer’s are just three out of many potentially devastating diagnoses clinicians havethe difficult task…
New podcast from CRL describes Factor-H

New podcast from CRL describes Factor-H

A few weeks ago, the scientific organization Charles River Laboratories (CRL) did a series on ‘inspiring scientists’ that showcase their work. Our President, Ignacio Muñoz (nacho) was featured in a documentary and a podcast. The podcast is now out. In it, Nacho is interviewed about his scientific work and the…
Huntington’s disease: the pope steps in to help raise awareness

Huntington’s disease: the pope steps in to help raise awareness

It was with the pomp and intrigue of a Dan Brown novel that earlier this month Pope Francis made his way into the Aula Paolo VI audience hall, a room the size of an aeroplane hangar in Vatican City. Flanked by the flamboyant Swiss Guard and dark-suited men muttering into…

El papa consuela a enfermos de Huntington

El papa francisco recibió en una audiencia especial a unos quinientos enfermos de Huntington acompañados de sus familias y benefactores. Según especialistas, esta enfermedad que no tiene cura tiene mayor incidencia en América Latina. Por Natalia Mendoza, CNN Español Publicado a las 15:45 ET (19:45 GMT) 23 mayo, 2017 VER NOTICIA
Support communities involved in disease studies

Support communities involved in disease studies

Lack of continued help for poor families involved in Huntington’s-disease research has sown resentment and mistrust, says Ignacio Muñoz-Sanjuan. By Ignacio Muñoz-Sanjuan After decades of research, a genetic therapy for Huntington’s disease is being tested in clinical trials. Sponsored by Swiss pharmaceutical firm Roche and US-based Ionis Pharmaceuticals, this trial…
El Papa recibió a la chica argentina que sufre una rara enfermedad mortal

El Papa recibió a la chica argentina que sufre una rara enfermedad mortal

El Papa consoló a cientos de enfermos del mal de Huntington, una enfermedad genética mortal difundida sobre todo en la América Latina, animándolos a “no sentirse una carga” y lamentando el “aislamiento y abandono” que sufren. Entre ellos se encontraba Brenda, una adolescente argentina de 15 años y el cantante…
Nacho speaks about Factor-H at HSG conference 2020 - Insights of the Year

Nacho speaks about Factor-H at HSG conference 2020 - Insights of the Year

On November 30th, Nacho spoke about the mission, vision, and goals of Factor-H at the 2020 conference of the Huntington Study Group (HSG), a well-known and leading clinical research organization. Nacho spoke as the Insights of the Year speaker. The conference is about 35’ long and contains some videos, followed…
Claudia Perandones: la investigadora que no tenía ni para los libros y hoy apuesta a vencer al coronavirus

Claudia Perandones: la investigadora que no tenía ni para los libros y hoy apuesta a vencer al coronavirus

Con mucho esfuerzo personal y familiar, se recibió de médica con diploma de honor, hizo una gran carrera como genetista y coordina los equipos del ANLIS Malbrán responsables de los testeos y de decodificar el genoma del virus. La causa del Huntington, el Papa y los amigos de Hollywood. Adriana…
Factor-H Reaches Out to Huntington’s Neglected Families of South America

Factor-H Reaches Out to Huntington’s Neglected Families of South America

  See this article written about Factor-H, from Hawken Miller, a young journalist who focuses on rare disorders. see his other articles about HD here Thank you!