Factor-H offers a free-of-charge legal assistance service in Colombia, with the sole objective of facilitating access to the services, medicines and supplies that the Colombian State ensures to all patients affected by Huntington’s disease. Factor-H aims to assist all HD families with navigating the complex landscape of accessing medical benefits…

The legal assistance program has been operating informally in Colombia and Venezuela for a few years. Recently, Factor-H decided to establish a more structured effort to reach more families and have more of an impact. In Colombia, Factor-H works with volunteer lawyer Carlos Enrique Diaz, who has been assisting families…

A couple of months ago, I met Monica Roa in Washington DC to discus whether we could team up to deal with the issues facing many of the Colombian families – the lack of institutional and government support, the refusal by many of the insurance companies (called EPS in Colombia)…