A central priority for Factor-H is ensuring that information about clinical research is shared in a way that does not create unrealistic expectations or add to the emotional burden faced by individuals and families affected by Huntington’s disease. While scientific progress is essential and provides reasons for optimism, it is…

During the third quarter of 2025, Factor-H, in partnership with Hábitat Luz, expanded its impact in the communities of San Luis and Barranquitas, reaching a total of 2,045 people, including individuals with Huntington’s disease (HD), their families, and children from the Abrazos Program.

At first, going to Barranquitas felt like stepping into the world of Mad Max. The heat, the dust, the precariousness, the sense that everything could fall apart at any moment. But over time, something shifted. Maybe it was accepting my mission—to help and inspire. Maybe it was realizing that in…

On July 10, 2024, I wrote a reflection piece following the investor conference where uniQure presented the encouraging 24-month results of AMT-130, the first HTT-directed gene therapy delivered directly into the brain regions most severely affected by mutant huntingtin —the caudate and putamen. At that time, early evidence suggested the…

24/09/2025 Ignacio Muñoz-Sanjuan, neuroscientist and founder of the non-profit Factor-H, has expressed optimism that an experimental gene therapy for Huntington’s disease, developed by uniQure and called AMT-130, could receive regulatory approval in the first half of 2026, in what is a very significant milestone for patients and families affected by…

On July 19, Factor H hosted a Medical Outreach event in San Luis, Venezuela, for people living with Huntington’s disease and those at risk of developing it. More than 100 individuals received comprehensive care—something that would not have been possible without the incredible commitment of 40 volunteers and partners. The…

Santa Marta, May 10, 2025 As part of the Abrazos Program, Factor-H held a special day dedicated to children and adolescents directly or indirectly affected by Huntington’s disease, under the theme “Caring for you is my priority.” The activity, held on May 10 in the city of Santa Marta, focused…

Gratitude Day took place on March 23rd, 2025 and culminated a week of events in Venezuela to honor the contributions of the Venezuelan families to the advancement of science and medicine. Factor-H, working alongside Habitat LUZ, volunteers from the community and health professionals, hosted a series of events ranging from…

Factor-H ofrece un servicio de asistencia legal gratuita en Colombia, con el único objetivo de facilitar el acceso a los servicios, medicamentos e insumos que el Estado colombiano asegura a todos los pacientes afectados por la enfermedad de Huntington. Factor-H tiene como objetivo ayudar a todas las familias con EH…

Factor-H 'La Luz' Caregivers program wins the 2024 Amgen/MIT Solve award at the Concordia Summit We are extremely honored and humbled by this award, which will fund our caregivers support program in Venezuela. The prize money will be used to fund a caregivers’ training program, support out ongoing psychological and…