Claudia Perandones put this video together for her recent visit to the CHDI offices in Los Angeles, USA. It is a moving account of all the clusters that are documented in latinamerica. Please look at it, share it, and help increase awareness of their existence and of the problems these communities face.
http://vimeo.com/91513375
Thanks
nacho
On November 5th, Larry Luxner, journalist and senior correspondent for the Rare Disease Advisor network, interviewed Dr. Ignacio Muñoz-Sanjuan about
Factor-H ofrece un servicio de asistencia legal gratuita en Colombia, con el único objetivo de facilitar el acceso a los
On November 07, 2024, Factor-H will host a fundraising event in Los Angeles to support our ongoing programs in Latin
Factor-H is a registered 501-(c)3 non-profit foundation in the United States (EIN 82-5395108)
English 
Spanish 
Portuguese