Emmy nominated cinematographer, Gindel Delgado, traveled across HD communities once more to gather images of people he already knows well. They welcomed his camera into their homes and their lives aware of the fact that he and Factor-h -who commissioned his work- will help to create awareness of their situation and will help them one way or another in the long and short term. He worked with some of the material captured and created the introductory video that opened the 2022 Congress, in Barranquilla Colombia.
Data Collection & Advocacy
Factor-H President is interviewed for the Rare Disease Advisor
On November 5th, Larry Luxner, journalist and senior correspondent for the Rare Disease Advisor network, interviewed Dr. Ignacio Muñoz-Sanjuan about