Surveys of Affected Regions - tracking families as the first step to advocacy

Surveys of Affected Regions - tracking families as the first step to advocacy

In spite of the fact that the regions flanking Lake Maracaibo in Venezuela, the Caribbean Coast of Colombia and the province of Cañete, in Perú, have the highest incidence of HD in the world does not mean we know how many people are affected or at risk. The work conducted…
Legal assistance program

Legal assistance program

The legal assistance program has been operating informally in Colombia and Venezuela for a few years. Recently, Factor-H decided to establish a more structured effort to reach more families and have more of an impact. In Colombia, Factor-H works with volunteer lawyer Carlos Enrique Diaz, who has been assisting families…
Special Assistance Program​

Special Assistance Program​

Why we need a special assistance program and why we need to expand it We know many of the families we represent experience dire circumstances. We cannot help everyone all the time. Aside from our basic assistance program, we established a Special Assistance program to address particularly difficult situations. Only…
Little Schools Program ​(Escuelita) in Barranquitas, Venezuela

Little Schools Program ​(Escuelita) in Barranquitas, Venezuela

El objetivo de modelo escolar es homologar el conocimiento de los niños y niñas a riesgo de EH no escolarizados de Barranquitas, con el necesario correspondiente a su edad cronológica y el nivel que debe tener para que pueda ser insertado o reinsertado en la estructura educativa formal oficial de…
Educational Strategies for youth​

Educational Strategies for youth​

Education takes many forms. We approach the issue of educating our friends, depending on their ages, from various angles. We work with educators and psychologists to help them cope with the specter of the disease and the very difficult situations they experience at home, and because of the fact that…
Programa Nuevos Horizontes​ (New Horizons). Re-structure of the Abrazos Program

Programa Nuevos Horizontes​ (New Horizons). Re-structure of the Abrazos Program

Objective of the re-structuring To implement a restructuring of the existing Abrazos Program to provide equity, physical and mental health to all children and adolescents of families affected by Huntington’s Disease (HD) in Colombia and Venezuela. extends prior Abrazos Program to cover all children living in HD families, regardless of…
The Latin American Professional Exchange Program

The Latin American Professional Exchange Program

The LA PEP program’s main objective is to provide educational opportunities to health professionals in Latin American enclaves with a high incidence of Huntington’s disease. Two main dimensions Send Latin American professionals to be trained to HD centers of excellence in Barcelona (Spain), Medellin (Colombia) and Santiago (Chile). Send a multidisciplinary team from…
An evidence-based clinical consensus for Latin America

An evidence-based clinical consensus for Latin America

Objectives of the Clinical Practice Guidelines for the Management of Huntington’s Disease in Latin America In 2020, Factor-h obtained a grant from Roche for a project to generate an evidence-based clinical consensus for Latin America countries. The general objective of this consensus is to approach the health problems and improve the…
The microcredit program aims to help families escape the poverty cycle

The microcredit program aims to help families escape the poverty cycle

Merriam-Webster Definition of Microfinance: “Financial services especially in the form of microloans provided to impoverished individuals and groups in poor and developing regions.” For Factor-H, microfinance is more than just a financial service. It is a tool to empower members of the disadvantaged HD communities, helping them become more resilient…