December 2025 marked another meaningful journey to Colombia for our annual Christmas celebrations with families affected by Huntington’s disease. Each year, across Peru, Colombia, and Venezuela, our local teams gather children at risk for Huntington’s disease together with their families—not simply for a holiday event, but to affirm community, dignity,…

A central priority for Factor-H is ensuring that information about clinical research is shared in a way that does not create unrealistic expectations or add to the emotional burden faced by individuals and families affected by Huntington’s disease. While scientific progress is essential and provides reasons for optimism, it is…

On January 3rd, 2026, at 7 am (UK time), my “Hermanito” Gindel rang me. ‘They’re bombing Caracas’ he said, ‘don’t worry, I love you, I’m safe’, ‘I’ll call you later’. A call like that leaves you in a state of anxiety. Fear of the unknown. And I’m not living there.…

From top to bottom, the reality of neurological care for people with Huntington’s Disease in Venezuela and the delivery of therapeutic advancement A story by Alex Fisher “……as the heat is turned up on HD science and the current US administration have also turned up the heat in the region,…

A story by Alex Fisher “In the small space that we have built so much on, it’s not just their genes but their everyday which is a moral laboratory, and the girl at the end of the world should remind us of that.” Alex Fisher is an occupational therapist who…

At first, going to Barranquitas felt like stepping into the world of Mad Max. The heat, the dust, the precariousness, the sense that everything could fall apart at any moment. But over time, something shifted. Maybe it was accepting my mission—to help and inspire. Maybe it was realizing that in…

Eight years ago, Johana Oviedo Barrios, a mother of three and a patient with Huntington’s disease from El Dificil, Magdalena State, Colombia was living in conditions of extreme vulnerability. Without access to basic services, a proper bed, or even a functional bathroom, her living conditions posed serious risks to her…

During May and June 2025, the HD communities in Juan de Acosta, Valledupar, Santa Marta, and Algarrobo took part in a series of art workshops that blended tradition, creativity, and personal development. Organized by Factor-H, these activities aimed to strengthen manual skills, stimulate creativity, and provide participants with a meaningful…

The Kids Program (or Program Abrazos) started in Colombia in 2013, after Ignacio visited HD families in the rural region of San Angel, in Magdalena State. I remember meeting a kid, Olver, who had been abandoned by his parents, and was living with his grandmother in a small ranch without…

Dilia Oviedo Güillín, a woman of unwavering spirit and strength, always dreamed of reuniting her deceased husband and children in a place where they could rest in peace together. From an early age, life presented her with numerous challenges, including a disease that would change her life completely, “Huntington’s Disease”,…