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El Programa de Asistencia Legal en Colombia

El Programa de Asistencia Legal en Colombia

Factor-H ofrece un servicio de asistencia legal gratuita en Colombia, con el único objetivo de facilitar el acceso a los servicios, medicamentos e insumos que el Estado colombiano asegura a todos los pacientes afectados por la enfermedad de Huntington. Factor-H tiene como objetivo ayudar a todas las familias con EH…
Factor-H hosts the US Premiere of two HD documentary films

Factor-H hosts the US Premiere of two HD documentary films

On November 07, 2024, Factor-H will host a fundraising event in Los Angeles to support our ongoing programs in Latin America.Factor-H is proud to present the US premiere for two documentary films about Huntington’s disease – The Light (The story of the Informal Caregivers for Huntington’s patients in Barranquitas, Venezuela, by Gindel…
Factor-H nominated for the 2024 Amgen Prize

Factor-H nominated for the 2024 Amgen Prize

We are honored to be 1 of 5 finalist nonprofit organizations being nominated for this prestigious award, selected out of 90 applicant organizations. The award of US$150,000 will be given to one of the five finalists.  The Amgen Prize 2024 rewards innovative in rare disease patient care.  Factor-H submitted an…
Small gestures matter - building Dilia Oviedo a mausoleum for her family

Small gestures matter - building Dilia Oviedo a mausoleum for her family

Dilia Oviedo Güillín, a woman of unwavering spirit and strength, always dreamed of reuniting her deceased husband and children in a place where they could rest in peace together. From an early age, life presented her with numerous challenges, including a disease that would change her life completely, “Huntington’s Disease”,…
Reflections on a visit to Zulia

Reflections on a visit to Zulia

Team work and scientific education Every year, Factor-H Vice President Roger Cachope and I visit the Colombian & Venezuelan communities at least once, and over time we have developed a close relationship with many of the HD families we support. These visits are particularly important for me, because they allow…
The Legal Assistance program in Colombia

The Legal Assistance program in Colombia

Factor-H offers a free-of-charge legal assistance service in Colombia, with the sole objective of facilitating access to the services, medicines and supplies that the Colombian State ensures to all patients affected by Huntington’s disease. Factor-H aims to assist all HD families with navigating the complex landscape of accessing medical benefits…
Healthcare activities in Venezuela

Healthcare activities in Venezuela

Health 'on board' for Barranquitas It is exciting to see the joy and willingness with which our volunteers and community service go to the health activities we organize in both Barranquitas and San Luis, which Factor-H and Habitat LUZ organize quarterly to care for the families afflicted with, or at-risk…
Factor-H and Familias Huntington Peru association bring assistance to vulnerable Peruvian HD families

Factor-H and Familias Huntington Peru association bring assistance to vulnerable Peruvian HD families

Factor-H has been supporting and working alongside the Peruvian association for several years now. The region of the Cañete province constitutes one of the largest clusters of HD in the world. The association is supporting the needs of 49 families afflicted with HD and a total of 80 patients. During…
Fundación Cinco Palabras supports Factor-H Programs in Venezuela

Fundación Cinco Palabras supports Factor-H Programs in Venezuela

Factor-H coordinates a Social Program in Venezuela for the improvement of the quality of life for individuals and families with Huntington’s disease (HD) in the towns of Barranquitas -Rosario de Perijá Municipality- and the area of the community of San Luis, in the city of Maracaibo, San Francisco Municipality, both…
Donations of school supplies in Colombia - Kids program

Donations of school supplies in Colombia - Kids program

By Arnel Arroyo Díaz We celebrate another milestone in our mission to support the most vulnerable HD communities! We are proud to share that we have once again delivered school kits to families afflicted with Huntington’s disease in more than 10 municipalities on the Colombian Caribbean coast. This effort has…
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