Health 'on board' for Barranquitas It is exciting to see the joy and willingness with which our volunteers and community service go to the health activities we organize in both Barranquitas and San Luis, which Factor-H and Habitat LUZ organize quarterly to care for the families afflicted with, or at-risk…

Factor-H has been supporting and working alongside the Peruvian association for several years now. The region of the Cañete province constitutes one of the largest clusters of HD in the world. The association is supporting the needs of 49 families afflicted with HD and a total of 80 patients. During…

Factor-H coordinates a Social Program in Venezuela for the improvement of the quality of life for individuals and families with Huntington’s disease (HD) in the towns of Barranquitas -Rosario de Perijá Municipality- and the area of the community of San Luis, in the city of Maracaibo, San Francisco Municipality, both…

By Arnel Arroyo Díaz We celebrate another milestone in our mission to support the most vulnerable HD communities! We are proud to share that we have once again delivered school kits to families afflicted with Huntington’s disease in more than 10 municipalities on the Colombian Caribbean coast. This effort has…

Gratitude day 2024 brings hope to Venezuela The importance of the contributions of the Venezuelan families to HD research and disease understanding cannot be minimized, even with the passing of time. The journey of these families in advancing our scientific and medical work started in the 1970s, after the presentation…

The week of Gratitude day, 23rd of March, has seen an inclusion of community events inside the HD communities of San Luis and Barranquitas. The celebration of the partnership between scientists and HD families has taken an unexpected turn this year and also became a celebration of the history of…

It is a reality that our patients with HD in Venezuela are subsisting in an environment of great precariousness, not only due to their economic limitations but also because specialized health care is inaccessible in Venezuela, since the national public system does not operate properly. Understanding this harsh reality is…

Alex Fisher is an occupational therapist specialized in caring for HD patients from the UK; she works actively with various working groups as part of EHDN, the European HD Network. She visited for the first time the HD communities in Venezuela, together with the Factor-H team, in September 2023. Alex…

The Health Day, conducted on September 26, 2023, was aimed at children and adolescents belonging to the EH community in Algarrobo in the department of Magdalena, as a collaboration between Factor-H, the University Metropolitana (Barranquilla), University Area Andina (Valledupar), Colegio el Carmen and GREMCAN S.A. (a Colombian occupational heath NGO).…

From September 6-14, 2023, Factor-H visited the HD communities in Barranquitas and San Luis and conducted medical, educational and humanitarian activities with volunteers and affiliated organizations. Below you can see a video summarizing the trip and a detailed diary of our visit.Text by Marina Gonzalez de Kauffman & Ignacio Muñoz-SanjuánVideo…