2020 was a year like no other. The global Covid-19 pandemic impacted the entire world, but it has taken a heavy toll on poor communities around the world. Most of the families we assist live in vulnerable conditions, and their access to employment and medical assistance were significantly impacted.  We reacted…

It is now 9:52pm in Los Angeles and it is officially my birthday in Spain. I was born at 8am on the 8th January of 1972 – 49 years ago today. As I write this, life is the USA is very complicated – we have had an attack on democratic…

Matt Rota is an illustrator who has recently become associated with our kids’ program at Factor-H. Below are some of the illustrations he created recently for some poems I wrote about the kids to commemorate the completion of the 5th year of the program in Colombia. What began as an…

On November 30th, Nacho spoke about the mission, vision, and goals of Factor-H at the 2020 conference of the Huntington Study Group (HSG), a well-known and leading clinical research organization. Nacho spoke as the Insights of the Year speaker. The conference is about 35’ long and contains some videos, followed…

The Huntington Study Group (HSG) is a USA-based non-profit organization dedicated to the development of therapies for HD, largely by promoting professional education and conducting clinical trials for HD. The Insights magazine is HSG journal where updates and special features are communicated, in all areas of relevance to the mission…

<br /> A few months ago I wrote a story about meeting Brayan, a young kid at risk for HD from Barranquitas, Venezuela (see blog post “Reflections on instilling a sense of hope”). Together with colleagues Matt Rota (https://www.mattrotasart.com) and Nicanor Cardeñosa, we put together a narrated illustrated story of…

by Tatiana Hinojosa Translated by Amanda Kauffman MY HOPE There are some moments where I think that life should be like a fantasy story, where we the children live in beautiful houses and wake up with the smell of spring flowers… When I was four, I was a very judicious…

By Tatiana Hinojosa Translated by Amanda Kauffman DESTINATIONS OF FAITH Greis prayed at night as the porcelain collection that adorned her wooden ledge looked at her family’s footsteps, the parsimony of time helped create the bad habit of fighting over everything and ended up driving her parents away. At that…

by Tatiana Hinojosa Translation by Amanda Kauffman Divine Signs The musical dawn in charge of the municipal band announced the beginning of the festivities of San Martin of Loba, patron of Astrea, a municipality located north of the department of Cesar. The sound of the fliers encouraged the sleeping hearts,…

by Tatiana Hinojosa Translated by Amanda Kauffman In My Dreams – The Story of Celia An imprisoned sigh escapes me at night, even if it looks like a game, it would steal to the chorus of a dark evening many treasures to fill your warm room with fantasies, would play…