Hace unos días hubo una emergencia en Colombia. Desde España oigo como Nacho me cuenta desde Los Ángeles que acababan de estar “apagando un fuego”. Su nombre es Nelson, y es querido. Ha tenido una recaída. Es como si una pequeña red invisible e infinita nos uniera a todos. No…
Primero una Web, ahora una nueva forma de comunicar y colaborar… Son algo más de las 7 de la mañana en este pequeño y bellísimo pueblo de la Costa Brava donde vivo. Para quienes hayan oido hablar de él, está en Gerona en España y tiene una pequeña muralla alrededor…
Today is the day. 2021 has not been an easy year. But for people with HD in Latin America things were much more difficult. We end the year with a last-day donation campaign based on hope. The hope we bring together to the HD families from South America. Emmy Award…
Our New Horizons program continues to evolve. Through a house-by-house survey we conducted in 2021, we have identified many more kids at-risk for HD living in very difficult conditions. This video clearly displays the environmental context in which many of the kids enrolled in the program since 2015 live, many…
The LA PEP program (Latin American Professional Exchange Program) got started a week ago! This program aims to identify aspiring young health professionals working in the HD communities we serve, and facilitate fellowships for them to get training experience at leading HD institutions and hospitals in Spain, Colombia, and Chile.…
Objective of the re-structuring To implement a restructuring of the existing Abrazos Program to provide equity, physical and mental health to all children and adolescents of families affected by Huntington’s Disease (HD) in Colombia and Venezuela. extends prior Abrazos Program to cover all children living in HD families, regardless of…
The LA PEP program’s main objective is to provide educational opportunities to health professionals that work in Latin American enclaves with a high incidence of Huntington’s disease. Health & Disease Management is one of the main areas of focus of Factor-H and one of the main programs is what we call LA…
Objectives of the Clinical Practice Guidelines for the Management of Huntington’s Disease in Latin America In 2020, Factor-h obtained a grant from Roche for a project to generate an evidence-based clinical consensus for Latin America countries. The general objective of this consensus is to approach the health problems and improve the…
Merriam-Webster Definition of Microfinance: “Financial services especially in the form of microloans provided to impoverished individuals and groups in poor and developing regions.” For Factor-H, microfinance is more than just a financial service. It is a tool to empower members of the disadvantaged HD communities, helping them become more resilient…
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