The Huntington Study Group (HSG) is a USA-based non-profit organization dedicated to the development of therapies for HD, largely by promoting professional education and conducting clinical trials for HD. The Insights magazine is HSG journal where updates and special features are communicated, in all areas of relevance to the mission…

<br /> A few months ago I wrote a story about meeting Brayan, a young kid at risk for HD from Barranquitas, Venezuela (see blog post “Reflections on instilling a sense of hope”). Together with colleagues Matt Rota (https://www.mattrotasart.com) and Nicanor Cardeñosa, we put together a narrated illustrated story of…

by Tatiana Hinojosa Translated by Amanda Kauffman MY HOPE There are some moments where I think that life should be like a fantasy story, where we the children live in beautiful houses and wake up with the smell of spring flowers… When I was four, I was a very judicious…

By Tatiana Hinojosa Translated by Amanda Kauffman DESTINATIONS OF FAITH Greis prayed at night as the porcelain collection that adorned her wooden ledge looked at her family’s footsteps, the parsimony of time helped create the bad habit of fighting over everything and ended up driving her parents away. At that…

by Tatiana Hinojosa Translation by Amanda Kauffman Divine Signs The musical dawn in charge of the municipal band announced the beginning of the festivities of San Martin of Loba, patron of Astrea, a municipality located north of the department of Cesar. The sound of the fliers encouraged the sleeping hearts,…

by Tatiana Hinojosa Translated by Amanda Kauffman In My Dreams – The Story of Celia An imprisoned sigh escapes me at night, even if it looks like a game, it would steal to the chorus of a dark evening many treasures to fill your warm room with fantasies, would play…

I Just listened to a TED radio podcast with poet and author Clint Smith, reflecting upon the current circumstances which evidence systemic oppression and violence against black Americans. We have all felt horror, frustration and fear in waves during the last few days. It is impossible for most of us,…

A message from Maria and Anyervi Gotera from Venezuela A message from Dilia Oviedo from El Dificil, Colombia

MEETING BETWEEN THE MARACAIBO PATIENT ASSOCIATIONS, FACTOR-H AND FUNDACION HABITAT LUZ … THE BEGINNING OF OUR EFFORTS TO BRING CHANGE TO THE COMMUNITIES MOST AFFECTED BY HD IN THE WORLDHappy New Year 2018!On Monday December 11th, we held an all-day meeting in the offices of Fundacion Habitat Luz, a Maracaibo,…

Factor-H organized a series of events beginning on July 4 in Barranquilla, Colombia, with the first gathering of at-risk HD youth from 5 Latin American countries, co-organized with HDYO. The meeting was a first step in identifying and training a group of young people from South America, to extend outreach…