Sábanas de San Angel – this past April. We pulled in with Fermín’s car loaded with food, hammocks, and clothes. The scenery was arid – this region has suffered from a profound drought for a while now, and everything is dried up. The Cañahuate trees the only bright color amidst…

My first – unexpected – science lecture for medical students in Barranquilla, Colombia Barranquilla is close to Juan de Acosta, the second largest cluster of HD patients in the world (to our knowledge). The prevalence was reported quite a few years ago by Dr. Daza in one of the few…

When we finally got our flight to Bogota from Quibdo, it was late at night. the plane was delayed and we did not take off until after 9pm. we landed around 11pm and we had to be back at the airport at 8am for the flight to Santa Marta. At…

Today we started a new campaign to help children living with HD in Colombia. see attached link please and spread the word! to Donate, please click here for Project Abrazos for HD Also see an explanation of the program. Thank you and I hope that together we can help these…

Our first leg of the trip to see HD families took us to a place I had never been before. Choco is an area of Colombia bordering Panama on the North and the Amazonian region in the South. Choco has borders with both the Pacific and the Atlantic oceans, and…

  Its almost time to visit Colombia! Here is the link to the meeting we will be participating it at the end of the 2 week trip to visit the Colombian Communities. I hope we will have a positive impact for the patients, their families, the physicians and the regulatory…

Our next trip to visit our Colombian friends and HD family is happening soon- from April 10-24, 2016. We are planning on going to Choco, Santa Marta, Juan de Acosta, Barranquilla, Medellin and Bogota. This time around, our friend and English journalist Dara Mohammadi (see his page!) from the prestigious…

AcolpEH just launched a new campaign called ‘Hugs’ – to raise funding towards the benefit of Colombian families, as well as to start fundraising to build a care center for the affected families https://www.youtube.com/watch?v=wABsvfEPT2E Please go and donate- right now the video is in Spanish but translation will come soon…

AcolpEH, the national HD patient association based in Bogota has been working with Factor-H for a few years in trying to develop aid programs to benefit the many affected families in Colombia. Based in Bogota, AcolpEH’s founder Janeth Mosquera issued a video recently where several of the families who received…

in 2015, we were able to raise US $20,000 in donations from pharmaceutical companies, which is being allocated to a variety of projects in Colombia. The goal is to help the neediest families as well as invest in longer term projects, such as the creation of an audio-visual guide to…