Dear all- today marks a historic day in the solidarity with the patients and their families in Chile and in all of Latinamerica- the Chilean HD association together with its collaborators have inugurated a center for the care of people affected with HD. Claudia Perandones attended the opening ceremony in…

Huntingtin targeting therapeutics are entering the clinical realm… after many years of work, 4 big players in the biotech/pharmaceutical industry are planning clinical trials in HD. Recently you might have heard about Roche, the Swiss pharmaceutical giant, acquiring the rights to develop ISIS’s lead antisense molecule to lower HTT expression…

Population: 6.264 in census – Regional Health System. 76  HD families identified, 13 families with more than 1 member affected (total current HD manifest individuals = 98). A full census is ongoing through local patient association (Avenhun Zulia). estimated prevalence for at-risk individuals is 1-5% of the total population. Needs:…

Barrio San Luis is a neighborhood in Maracaibo, Zulia. Of approximately 3100 people living here, 700 are at risk (23%). The prevalence is estimated to be extremely high, perhaps reaching 10% of all people living in this small and confined area near the city of Maracaibo. During our February/March 2013…

Venezuela remains the country with the highest density of HD in a single location, in and around lake Maracaibo, in the province of Zulia. Factor-H is committed to helping the Venezuelan HD affected communities. The main communities in Venezuela with active Factor-H efforts are in Caracas, and in the Zulia…

Affected communities • Magdalena (El Difícil y San Ángel) • Juan de Acosta • Antioquía • Chocó • Bogotá Participating physicians • Dra. Natalia Costa Baena • Dra. Sonia Moreno • Dr. Oscar Bernal • Dr. Guillermo A. Monsalve Duarte • Dr. Mike Espinoza Participating community advocates Asociación Colombianos por…

A recent manuscript by a Swedish group (Ji et al., The Lancet, 2012) has revealed that the incidence of cancers amongst individuals bearing mutant expanded polyglutamine genes (and particularly Huntingtin expansions) is significantly lower than in the general population, even after adjusting for age. This study is a continuation of…

Recently, Adrian Burton, a medical writer, published an article about HD in Latin America which focused largely on the efforts of Factor_H in this continent. You can download the article by clicking on the link below. Enjoy reading it! The Lancet article  

Please read the article below, when we launched Factor-H in Argentina… article featuring Ignacio  Munoz-Sanjuan, Claudia Perandones, and Charles Sabine (an HD carrier), published in the Clarin newspaper following an interview in Buenos Aires. Clarin Article  

Official launch event for Factor-H in Mendoza, Argentina The official launch of Factor_H took place in the Sheraton hotel in Mendoza, Argentina, on October 12, 2012. The event included a seminar by Charles Sabine (see links here for youtube videos of his HD seminars; link), a friend and collaborator who…