AcolpEH, the national HD patient association based in Bogota has been working with Factor-H for a few years in trying to develop aid programs to benefit the many affected families in Colombia. Based in Bogota, AcolpEH’s founder Janeth Mosquera issued a video recently where several of the families who received…

in 2015, we were able to raise US $20,000 in donations from pharmaceutical companies, which is being allocated to a variety of projects in Colombia. The goal is to help the neediest families as well as invest in longer term projects, such as the creation of an audio-visual guide to…

In April 2014, the first home renovation project started in Medellin, as a collaborative project between Factor-H, Habitat for Humanity, and Acolpeh. Together we raised over US$8000 through the Habitat web site, and together we identified a few families in need of improved housing conditions. The first project took 3…

Finally, we were able to donate more than 500 pounds of clothes for the Colombian communities. DHL sent the boxes free of charge to Factor-H, courtesy of Conexion Colombia, an NGO who financed the shipment. The clothes were sent to El Dificil (Magdalena State), Juan de Acosta, Bogota, Medellin, and…

La poblacion de la EH de Juan de Acosta es una de las poblaciones mas grandes del mundo en cuanto a prevalencia de la enfermedad. Hace algo mas de un año visite a esta comunidad en Colombia, donde me reuni con el Dr. Daza, el neurologo que llevaba tratando a…

500 pounds (300+ kilograms) of donated clothes have arrived at several communities in Colombia. Thanks to the Conexion Colombia NGO (www.conexioncolombia.com) , all the donated clothes Factor-H collected in Los Angeles have made it to their destinations. This is the first ‘international’ shipment of donated goods to benefit the Colombian…

  NOV 06 2013 PLEASE CONSIDER MAKING A DONATION. Habitat for humanity and Factor-H, my other ‘job’, started a collaboration together with the Colombian family association (AcolpEH), to raise funds for patients living in suboptimal conditions in Colombia. Find the link here: http://share.habitat.org/fighting-huntingtons We are very behind, and we need…

Affected communities • Magdalena (El Difícil y San Ángel) • Juan de Acosta • Antioquía • Chocó • Bogotá Participating physicians • Dra. Natalia Costa Baena • Dra. Sonia Moreno • Dr. Oscar Bernal • Dr. Guillermo A. Monsalve Duarte • Dr. Mike Espinoza Participating community advocates Asociación Colombianos por…

Recently Claudia Perandones and I took our first trip to visit some the affected communities in Colombia. A map of our trip is included here. This was a very important trip for us and for all affected by HD. We met with health officials, township mayors, local patient representatives (Janeth Mosquera…

Recently Factor-H visited Colombia (February 2013). During this visit, we went to meet the Family Oviedo Oviedo from the town of El Dificil, Magadalena. The local TV news station, El Caracol, filmed a documentary on the family and our humanitarian projects. We were accompanied by the local patient association representative,…